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Follow-up information

Clinical follow-up data is collected every six months for three years (follow-ups 1-6), then annually thereafter (follow-up 7+).

Completing forms

The document below reflects the data collected at follow up for participants in the BSRBR-RA.

You don't need to remember to complete these forms, as the online database will indicate which participants are due follow-up and allow you to enter the data directly.


To identify follow ups currently due, click on “Follow-ups that are currently due” from your homepage.

 

Screenshot of the section of the database that shows how to view follow ups that are currently due.

 

We also collect quality of life data via online questionnaires (HAQ, EQ-5D, Work Disability). These are sent directly to participants who have opted to complete patient follow up (Consent Form v11 onwards). For this, we will need a valid email address for participants.